ChILD Lung Foundation UK is a new organisation formed to support children and families affected by Childrens’s Interstitial Lung Disease (ChILD). www.childlungfoundation.org
Blue Badge
www.direct.gov.uk/en/DisabledPeople/MotoringAndTransport The Blue Badge scheme provides a range of parking benefits for disabled people with severe mobility difficulties who travel either as drivers or as passengers.
Parent Partnership Service www.parentpartnership.org.uk Offers impartial advice, information and support to parents/carers of children and young people with special educational needs
British Paediatric Orphan Lung Diseases (BPOLD) www.bpold.co.uk BPOLD aims to establish a registry of nine rare lung diseases in children in the UK. (OB is one) The registry will provide data on the prevalence and incidence of individual rare lung diseases and inform research projects which will increase our understanding of these diseases and ultimately improve treatment strategies for these children.
Gift- The Children's Transplant Charity www.htft.org.uk Gift is a registered national charity that offers support to children and families who are affected by transplantation. We aim to provide both emotional and practical support throughout the journey of transplantation.
Awards for all http://www.awardsforall.org.uk/england/index.html Awards for All England is supported by the Arts Council England, the Big Lottery Fund, the Heritage Lottery Fund and Sport England.
The Australasian Registry Network for Rare Orphan Lung Disease http://www.arnold.org.au/ |