National Registry for Obliterative Bronchiolitis OB is not recognised in the public mind, many doctors are also not familiar with it. A National Survey would establish diagnostic recommendations for doctors so that children with OB can be correctly and quickly diagnosed. It would bring together in one place any knowledge about OB. This would give the opportunity for children with OB to be included in future clinical medical trials. It would open the door to future research and treatment. OUR BIG GOAL
We would like to help fund such a registry but as you can imagine it requires a large sum of money- £250,000.
We believe it would fundamentely change the way OB is recognised and treated in the future and would be first step towards facilitating research. Please help us reach this goal by supporting our fundraising. 
Together we can make the future brighter for children with OB. |