Breathtakers

Supporting sufferers of Obliterative Bronchiolitis and other Rare Lung Disease

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Latest Updates and News

 

Site last updated  26/06/2010
This page is to alert you to any changes, tell you what pages they are on and inform you of the latest news.

 

Site Update 26/06/10

  • Research and news: new lung growth.

Site Update 17/06/10

  • Research and news : new stem cell breakthrough

Site Update 08/06/10

  • Fundraising/Ebay mission/fish donation

Site Update 20/05/10

  • Research and News- Geron report on drugs to lessen fibrotic process in lungs
  • Latest Bronchitol

Site Update 06/05/10

  • Practical support- Financial- Savings gateway and extra trust fund payments

Site Update 21/04/10

  • Practical Support- Financial -see carers allowance/ILF/ allowance changes/fair access to services
  • Research and News-Rare Diseases UK Alliance

Site Update 23/03/2010

  • Useful Links: Rare Lung Disease Consortium and

          The Mesothelioma Center

Site Update 22/03/2010

  • New Page created : In Fundraising area: Recycle4 Charity

Site Update 18/03/20100: Practical support/finacial

  •  New grants from family fund.
  •  Carers allowance rule changes

Site Update 07/03/2010 Your Stories : Briana

Site Update 18/02/2010

  • About Us: New regional Contacts

Site Update 13/01/2010

  • Coping with School : Lamb report 

Site Update 30/11/09

  • Your Stories- Laylun update

Site Update 18/11/09

  • Useful Links- Arnold-Is the Australasian network for rare lung disease. Its a great site to check out whats happening in Australia and New Zealand and has links to clinical trials. Log in from useful links page

                        Site Updates 2008

 

 

                        Site Updates 2007

/

 

  • Kiri's Breathtakers Stall Hurstbourne Tarrant School Fete. June 2010

 

  •  Latest Australian news. Break through in stem cell research

http://www.abc.net.au/am/content/2010/s2929158.htm

 

 

 

 

 

 

 

 

When you smoke in the car, they smoke.

  • This is why the BLF have launched a petition calling for smoking in cars to be banned where children under the age of 18 are present. They  would like to collect more than 50,000 signatures by Christmas 2011 so they can deliver them to all UK Governments in 2011. Please show your support by signing the petition today. Please pass this along to six friends or family members who care about improving children’s lung health.

 

http://www.lunguk.org/media-and-campaigning/childrens-charter/help_support

 

 

  • Do you sell or shop on ebay? if so you can raise money for us at the same time for free . Have a look at our ebay fundraising page.

 

 

 http://tinyurl.com/2utueqy

 

 

  • Adam Cameron's interview with the Northern Echo, brilliant, have a look.
    Adam is a real star, despite coping with OB he is running in the Junior Great North Run for Breathtakers and we are so proud of him.

http://www.thenorthernecho.co.uk/video/regional/101148/

 

  •  Karen did it, 77 miles from Andover to Southampton and back. Well done, massive effort.

 

  • See our events listing pages for details of Adam Cameron's school fundraising events.

 

  • A new forum has been created for parents of oxygen dependent children to chat and support each other, called Haveabreather.com

          Check it out below

                      http://www.haveabreather.com/useful-links-t15.html

 

 

  • Darren and Mike made it to John O Groats- hooray and a HUGE well done.  Have a sleep guys !!!!

  • Darren and Mike have started their epic cyclye ride today (Saturday 15th May) from Lands End. Go lads!!! We will keep track of their progress. Please suport this HUGE effort .

                    http://www.justgiving.com/mike-spencer69

 

 

 

  • Adam Cameron and Antony Hilton are taking part in the junior Great North Run for Breathtakers on 18th September. Adam suffers from OB so this is a tough one for him. You can sponsor at:

 

 

http://www.justgiving.com/Adam-Cameron

 

 

 

 

 

Canopius/J.P. Morgan Corporate Challenge Race

                                

Staff from Canopius Group will be participating in this year’s

J.P. Morgan Corporate Challenge race and have kindly chosen Breathtakers as their nominated charity.

 

You can sponsor them on the link below

 

http://www.justgiving.com/Canopius-Team

 

 

  • Just had the amazing news that Rachel Wakefield had her lung transplant yesterday. All our thoughts are with her and the donor family. You can follow her progress on

http://lungs-for-life.blogspot.com/

 

 

 

  •   Mike Spencer and Darren Nason are cycling from John O Groats to Lands End on 15th May for Breathtakers. Laylun Nason age 4 has OB Darren is his Dad and Mike his Uncle Please sponsor them  on

   http://www.justgiving.com/mike-spencer69

 

  • Please join the organ donor register- its so easy to say    YES

                                             

                                    www.organdonation.nhs.uk

 

 

  • ST Mary's Fit4Fun in Southampton was great fun and all the children who came had a good time climbing the wall and chatting with the other kids. Thanks to everyone who came and made the day a sucess.

 

  • Our Ambassador Kiri Thompson has been on Andover Sound radio this week talking about Breathtakers, her role and raising awareness. Well done Kiri.

 

  • Contact a  Family want to find out how families are coping financially  in 2010 raising a disabled child. If you would like to take part in their online survey go to:
  • http://www.surveymonkey.com/s/T2S2ZZF

 

  • Breathtakers welcomes Rachel, Joanne and Emma. They will be offering local support in their designated areas so please feel free to contact them or let them know of any activities or opportunities for us to raise awareness of OB in your area.

     

  • You can see Kiri switching on the Xmas lights on you tube

  • www.youtube.com/watch?v=nfLhONXu7Z4

  •         

  • Well done and thanks to our cyclists who made it from Andover to Southampton Sunday 13th. See pictures on the event picture page.

 

  • You can now request our FREE information and support pack from the 'What is OB' page. Packed with helpful information and tips.

 

  • To help with our fundraising you can now purchase excellent quality 'fruit of the loom' vests and t-shirts from our merchandise page. Great just to wear to raise awareness or if you are holding a fundraising event for us. All money raised goes towards supporting children with OB.

 

  • Our brochure can now be downloaded in PDF from site- go to About Us page

 

  • We are delighted to have recieved support from the Lottery funding which enables us to improve our technology and website. We hope to launch our new site in April.

  • A new podcast from Contact a Family has been produced to help explain the meaning of Special Educational Needs (SEN). The podcast also has more information about what to do if you are concerned your child has SEN, what schools and the local authority can do to help, how to request a 'statutory assessment' and the 'statementing' process.
    To listen to the podcast visit Web:
    http://www.cafamily.org.uk/SEN_England.mp3 .    
    •  

      • You can now donate via JUSTGIVING.

 

 

  • If you want to chat with other families who are affected by OB why not use the forum at www.BPOLD.co.uk. For further details of this great resource go to the emotional support page on this site.

                     

 

 


 

 

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