Breathtakers

Supporting sufferers of Obliterative Bronchiolitis and other Rare Lung Disease

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Latest Updates and News

 

Site last updated  18/03/2010
This page is to alert you to any changes, tell you what pages they are on and inform you of the latest news.

 

 

Site Update 18/03/20100: Practical support/finacial

  •  New grants from family fund.
  •  Carers allowance rule changes

Site Update 07/03/2010 Your Stories : Briana

Site Update 18/02/2010

  • About Us: New regional Contacts

Site Update 13/01/2010

  • Coping with School : Lamb report 

Site Update 30/11/09

  • Your Stories- Laylun update

Site Update 18/11/09

  • Useful Links- Arnold-Is the Australasian network for rare lung disease. Its a great site to check out whats happening in Australia and New Zealand and has links to clinical trials. Log in from useful links page

                        Site Updates 2008

 

 

                        Site Updates 2007

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  • Canopius Insurance has choosen Breathtakers as their charity for the J P Morgan Corporate Challenge fun run in London. July 8th 2010. See fundraising calendar or sponsor at

            http://www.justgiving.com/Canopius-Team

                                        

                                           

 

  • Just had the amazing news that Rachel Wakefield had her lung transplant yesterday. All our thoughts are with her and the donor family. You can follow her progress on
  • http://lungs-for-life.blogspot.com/.

 

  •   Mike Spencer and Darren Nason are cycling from John O Groats to Lands End on 15th May for Breathtakers. Laylun Nason age 4 has OB Darren is his Dad and Mike his Uncle Please sponsor them  on

   http://www.justgiving.com/mike-spencer69

 

  • Please join the organ donor register- its so easy to say    YES

                                             

                                    www.organdonation.nhs.uk

 

 

  • ST Mary's Fit4Fun in Southampton was great fun and all the children who came had a good time climbing the wall and chatting with the other kids. Thanks to everyone who came and made the day a sucess.

 

  • Our Ambassador Kiri Thompson has been on Andover Sound radio this week talking about Breathtakers, her role and raising awareness. Well done Kiri.

 

  • Contact a  Family want to find out how families are coping financially  in 2010 raising a disabled child. If you would like to take part in their online survey go to:
  • http://www.surveymonkey.com/s/T2S2ZZF

 

  • Breathtakers welcomes Rachel, Joanne and Emma. They will be offering local support in their designated areas so please feel free to contact them or let them know of any activities or opportunities for us to raise awareness of OB in your area.

     

  • You can see Kiri switching on the Xmas lights on you tube

  • www.youtube.com/watch?v=nfLhONXu7Z4

  •         

  • Well done and thanks to our cyclists who made it from Andover to Southampton Sunday 13th. See pictures on the event picture page.

 

  • You can now request our FREE information and support pack from the 'What is OB' page. Packed with helpful information and tips.

 

  • To help with our fundraising you can now purchase excellent quality 'fruit of the loom' vests and t-shirts from our merchandise page. Great just to wear to raise awareness or if you are holding a fundraising event for us. All money raised goes towards supporting children with OB.

 

  • Our brochure can now be downloaded in PDF from site- go to About Us page

 

  • We are delighted to have recieved support from the Lottery funding which enables us to improve our technology and website. We hope to launch our new site in April.

  • A new podcast from Contact a Family has been produced to help explain the meaning of Special Educational Needs (SEN). The podcast also has more information about what to do if you are concerned your child has SEN, what schools and the local authority can do to help, how to request a 'statutory assessment' and the 'statementing' process.
    To listen to the podcast visit Web:
    http://www.cafamily.org.uk/SEN_England.mp3 .    
    •  

      • You can now donate via JUSTGIVING.

 

 

  • If you want to chat with other families who are affected by OB why not use the forum at www.BPOLD.co.uk. For further details of this great resource go to the emotional support page on this site.

                     

 

 


 

 

                                                 General Archived News